Wayland Patch 5/13/11: Jog for Jessie Namesake Is 'Happy, Easy-Going'. Meet Jessie Aufman, an 8-year-old student at Wayland's Claypit Hill School who loves music and bright colors and "The Wiggles" and her 5-year-old brother, Dylan. Dressed in bright purple pants and a pink shirt, Jessie laughs joyfully as her mom, Cari Cornish, sings "Row, Row, Row Your Boat" and snuggles with her daughter. Cornish knows Jessie loves these things – in fact, anyone could see that from Jessie’s grin – but Jessie can’t actually tell her mom how she feels about music or colors or her brother. Jessie has Sanfilippo (san-fi-LEE-poh) Syndrome, a terminal genetic disease that causes sugars to build up on the brain, progressively inhibiting movement, speech and cognitive abilities. Children with Sanfilippo have a life expectancy of 12-20 years.
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